Remember, you're not alone.
There are people out there who can help too. You can ask your own physician or a friend of the family who may have more knowledge about the condition.
You can even ask the study team to put you in touch with other families who have faced the same decision. Connecting with families who have dealt with the same disease or who have been in a study can often help you.
And ask questions of your medical team—your primary care doctor, nurse, specialist or others involved in your child's care.